Pure Crazy

I have to say I'm pretty impressed that it's been less than 30 days since my last post. It has just been so very crazy around here. I kept meaning to sit down and post things. Then I would get distracted with life or doing things. Like sewing a new dress for Squeaker. That's right I made that dress!! I'm proud of it. It has appliques, trim, hand beading, binding, an invisible zipper and it is fully lined! Yes dear friends I move truly moved into the world of being a seamstress. I can't design or pattern very well, but I sure can cut read and alter a pattern if needed. Oh happy day!

Squeaker has been pretty healthy. Sleep has started to go back to normal, when we can stay on schedule. The last couple weeks between doctors and travel we have missed a lot of naps. And it has been rough for all of us. Squeaker has been a pretty good trooper about it all but it is rough. This last Monday the tubing broke on Squeaker's infusion. By the time I got the pump stopped almost 2/3rds of her dose was gone. I talked with the pharmacy and they talked to the doctor. We decided since Squeaker has been healthy that we will forgo and extra infusion and just wait until next week. This morning Squeaker woke up sick-ish. Groggy, didn't want to get up for over an hour. She was pretty happy during the day but a stuffy nose and easy meltdowns but we survived. Squeaker will probably get sicker as the week goes on. If she gets too bad we may have to move infusion for this week to Sunday.

Trey is more stable but in his head he is still very dizzy. He has been wearing glasses that help block

certain types of light and hats to minimize the light that gets into his eyes. It seems to be helping a lot keeping the brain in check. Trey still walks with a cane, but relies on it less. We were up in Indiana for Spring Break and had a chance to try some acupuncture. It seemed to help too. It will be a while before we can go back. Yes there are acupuncture clinics where we live but they are more expensive. While we were visiting family we found out that not only did the short term disability get denied but Trey lost his job. We are working on a plan to stay here and have Trey finish is MBA. There just need to be a few ducks that line up for that plan to work. We know if our plan is right the Lord will help guide us.

Today was a wonderful southern spring day. We cleaned up some brush in the back yard and I mowed the lawn. Hopefully in the next week we can clean up the garden patch and get a garden planted. I swear the best way to treat stress, anxiety, and depression is service for others and gardening.

An Awesome Day

I have had an awesome today. Sure it had it's ups and downs, but as I sit down at the end of it I'm feeling great. What made it great? Well it's the little things.

1- A clean kitchen. I was able to get the dishwasher run and emptied. The kitchen cleaned, some beef cooked and frozen. Then I cooked dinner and cleaned the kitchen.

2- Laundry. I've been a little behind on laundry lately. I usually just do a load every day or two. So it never piles up. Well I feel behind. But with a day a of testing yesterday and doctors today I've just been focusing on getting the laundry clean. Once dry I'd just toss it in the tv room for folding later. Today I finished washing the laundry but getting it folded and put away!

3- Play time with Squeaker. The last few months with trying to take care of Trey and all his appointments I haven't had the energy to play with Squeaker as much as I used too. I feel pretty bad about it a lot of days. But I only have so much energy and when it comes to cooking dinner and playing I kind of need to make dinner. Today it was nice out I had decent energy so we opened the back door and played a game. 30 minutes of just her and me. No fussing, no meltdowns, just play. It was wonderful.

4- Picked up a book. There is a book series called Fablehaven. I have read the first two books, it's a five book series. When I was at the Library with Squeaker last week I saw the series on the shelves. And had the thought I should really finish it. Sadly Book 3 wasn't there, bummer. The librarians had it transferred and today I picked it up. Wahoo!!!

In all the craziness of the last few months I am so very glad to have and AWESOME DAY!!!

Hanging On

The nasty no sleep monster has decided to come back for a visit. He's been here almost 3 weeks and

his welcome is worn out. The biggest problem is the lack of cause. We know that Squeaker is un-well but poor sleep is pretty much the only symptom. Her nose has been a little runny but with no cough or serious congestion there isn't a lot we can do about it. We have the humidifier going, essential oils, upped her pain killers, not skipping inhalers, keeping the house cold. It is all helping some but not a lot. She is still waking every 45-90 minutes. There are times when she can get herself back to sleep but most of the time she needs some sort of attention.
So right now I'm in hanging on mode.

At this exact moment I'm in buried mode. I have Squeaker at my right, Zelda at my legs and Raek has plopped his 20lb self on my chest. I wish you could see it. Hahaha.

It's Just A Lot

Quick update and then I'm off to bed.

Trey has been in a specialized physical therapy program for 4 weeks now. And although he still feels like his brain is on the ocean he can walk in the house without a cane. Once out of the house he is supposed to use the cane because in less familiar surroundings you use more of your brain. We acquired a temporary Disabled Parking Permit for him. Especially when he has to drive himself to class. Yup Trey is still in grad school. We looked into pulling out for the semester but it was too late. It's been an adjustment in study habits but he is making it work. We have also started tracking calories, sodium, and sugar intake for the both of us. Not only is this helping us both stay on track about loosing weight but we can show all the doctors the sodium and sugar intake for Trey. Yes, they ask about that stuff.

Squeaker as you may have read is no longer squeaking. Looking back over that last few months though we have noticed she has been talking more. Sadly some of that talking is arguing and poor attitude. Hey she is 4 it was bound to happen. Sometimes it's kind of funny because she will try to take away our privileges when we don't do exactly as she asks. Sorry kiddo, that's just not how it works. Our biggest struggle has been when she gets hungry. Food can still be very painful for Squeaker so getting her to eat is a struggle. But if she doesn't eat oh my that's a horrible struggle. Trey and I have chosen our line in the sand and there were stay. We know it will get better and being a consistent parent is hard but we know it will pay off in the end.

As for me. Oh well I'm busy. If you didn't figure that out already. I am doing 99% of the driving, I try to entertain Squeaker daily so Trey can study. I try to keep laundry moving and cleaning done. I do the cooking, figure the calories, and pack up all the leftovers. I've also starting doing some testing site stuff to help earn a little extra money. Currently Trey is on short term disability insurance which is wonderful. But is getting to the point that it only pays 60% of his salary. I'm very happy it pays that, but it does leave us a little short every month. We have some savings but it won't last forever. I just figure if I can start now the longer the savings will last. I would love to pick up some work at home data entry. There are jobs out there but where Trey is not able to care for Squeaker, and do his rehab, I can only work during the night hours at home. In the future I may need to take a late night shift outside the home but we aren't there yet. Oh and to top it off I'm on day 3 of 5 of an antibiotic. I have a sinus and respiratory infection.

Which folks just proves how awesome my husband is. Trey has a lot going on. I know that chronic vertigo doesn't sound like much of a diagnosis but it is really hard to constantly feel like you are falling over. While I've been sick Trey has just been doing as much as he can. This weekend when he didn't have to study he's been letting me sleep. Since I still sit with Squeaker to put her to sleep he makes me warmed caramel milk and brings it to me. Then tells me "When she is asleep your bath will be ready." I mean honestly does a hubby get any better? He's just so awesome.

Well that's the update. I should get some shut eye. We see the Neurologist tomorrow afternoon. We aren't expecting much in the way of answers, but maybe a few ideas of what to do next or try would be nice.  So ya know, we'll see. :)