In related news. More immunology test results came back. Well it's not good news. Squeaker does not make enough antibodies to support her system. For example they gave Squeaker a pneumonia vaccine to see how she would react. Before the vaccine Squeaker was considered "safe" from 3 of 17 strands of pneumonia and after the vaccine she was safe from 4 of 17 strands. Normally after 2 vaccines you are fully protected from all 17 strands.
As frustrating as it is to get Squeaker approve for infusion therapy I get why insurance doesn't want to pay. That stuff is expensive! Per gram IVIg is twice the cost of gold, and the bigger Squeaker gets the more grams she needs.
Want to figure out what you would need?
Take your weight in pounds 150 lbs
Turn it into Kilos (times .45) 67.5 kilo
Times 2 for the grams needed 135 gram
Divide by 12 11.25
Times 8 for blood donors 90 blood pints
Times 4 for plasma donors 45 plasma pints
Price per gram $46
Total price for medicine $12,420
Crazy huh? One more thing to add to the crazy. A healthy adult can only donate 6 pints of blood a year. Now a healthy adult can give up to 100 pints of plasma a year.
The point of saying all this is to let the world know. I'm not trying to throw a pity party or say woe is me. Each and everyday I am thankful for my Squeaker and what health she does have. We still get to do a lot of things, and have a lot of fun. But tonight I encourage everyone to make sure you say "Thank You" for your children and what health they have. For the joy and fun they bring into your life. Be thankful for it all.
Then tomorrow wake up and find a place where you can donate blood or plasma. Get some friends together and go donate. There are many people in the world who use it. Hopefully soon our little Squeaker will be one of them. For the seven month trial they want Squeaker to do she will use up to 105 pints of blood and/or up to 53 pints of plasma. So get donating!